WE TAKE
GOOD CARE

The project is coordinated by a National Steering Committee
who oversee all phases of the study.

chief investigators

Doctor Simon Carter

Academic Paediatric Nephrologist at the Royal Children’s Hospital, Melbourne.

Doctor Hugh McCarthy

Paediatric Nephrologist at the Sydney Children’s Hospitals Network

Doctor Anke Raajimakers

Pediatric Nephrologist at The Sydney Children's Hospital, Randwick, Sydney and conjoint senior lecturer at the University of New South Wales

Doctor Steven McTaggart

Pediatric Nephrologist at Queensland Children's Hospital, Brisbane and Executive Director Medical Services at Children's Health Queensland

Doctor Robin Turner

Senior Research Fellow, School of Public Health, University of Sydney

Doctor Anita van Zwieten

Epidemiologist and Lecturer at the School of Public Health, The University of Sydney

Associate Professor Armando Teixeira-Pinto

Senior Research Fellow at School of Public Health at University of Sydney

Professor Suncica Lah

Professor of Clinical Neuropsychology at the School of Psychology, The University of Sydney

Doctor Tonya Kara

Paediatric Nephrologist at Starship Children’s Health Auckland

Doctor Amanda Walker

Director of Nephrology at Royal Children’s Hospital in Melbourne

Doctor Siah Kim

Paediatric Nephrologist at The Children’s Hospital, Westmead

Doctor Fiona Mackie

Paediatric Nephrologist at Sydney Children’s Hospital

Doctor Anna Francis

Paediatric Nephrologist at Queensland Children’s Hospital, Brisbane

Doctor Belinda Barton

Head of Children’s Hospital Education Research Institute, The Children’s Hospital at Westmead

Doctor Gabrielle Williams

Research Fellow at the School of Public Health at University of Sydney

Professor Kirsten Howard

Research Professor in Health Economics at School of Public Health at University of Sydney

Professor Allison Jauré (nee Tong)

Principal Research Fellow at the School of Public Health at University of Sydney

Professor Jonathan Craig

Vice-President and Executive Dean of the College of Medicine and Public Health at Flinders University and Matthew Flinders Distinguished Professor

Associate Professor Germaine Wong

Principal Research Fellow at the School of Public Health at University of Sydney; Transplant Nephrologist at Westmead Hospital

associate researchers/investigators

Anh Kieu

Data Manager at the Centre for Kidney Research, Children’s Hospital at Westmead

Brendan Cusack

Haemodialysis Coordinator at Royal Children’s Hospital Melbourne

Kerry Chen

Research Assistant at School of Public Health at University of Sydney

Doctor Madeleine Didsbury

Research Assistant at School of Public Health at University of Sydney

Laura James

Research Assistant at School of Public Health at University of Sydney

Doctor Jennifer Lorenzo

Developmental and Educational Psychologist at The Children’s Hospital at Westmead

Having a holistic understanding of how chronic kidney disease affects both children and their families matters to us. We know that families are affected emotionally, logistically, and financially. It's not always possible to share all this in a 30 minute consultation, though, so taking the time to figure out what really happens behind the scenes and the ways that the clinical team can provide meaningful long-term support is key.

Clinician

Not working was hard. Every time I decided, okay, right that's it, this is the next five year plan, this is what we're going to do, she'd end up in hospital.

Mother, 40s

You have to borrow some money then you have to repay that borrowed money back. We borrowed some money a couple of times. We had to pay it back and we're broke again. So we had to pay that back and you can't keep doing that or you're back in the same spot all the time. So we try and do it off our own backs and it doesn't always work.

Father, 40s

Team

WE TAKE GOOD CARE

chief investigators

associate researchers/investigators

WE TAKE
GOOD CARE